Friday, April 2, 2010

A Mother's Courage: documentary

Hi all,

I just finished watching "A Mother's Courage: Talking Back to Autism" on HBO, and I admit to feeling a little disappointed. I had expected a more informative look at the various therapies/interventions out there, and instead there were very small clips of Temple Grandin, Simon Baron-Cohen, Geraldine Dawson describing autism. Then Margaret, the mother in the film, meets another mother whose son was helped to communicate by Soma Mukhopadhyay, who established an organization in Austin, Texas called "HALO" (Helping Autistic Learning Outreach). Soma, in India, taught her son Tito using a method she developed called the Rapid Prompting Method...now Tito, her son, is an adult, a poet and published author. Margaret takes her son to Soma and we see the first few times Soma teaches Keli, the son. Yes, Keli does use pointing to answer some questions, and Soma uses her Teach and Ask method. Now, I was impressed at how much Keli seemed to know, including how to spell by pointing to letters on a letter board. Unlike Facilitated Communication, in which a facilitator holds the pointer's hand or arm, in Rapid Prompting Soma uses small tactile cues...however, to what extent is she moving the letter board closer to the next appropriate letter for the answer? In the second to last scene, we see Soma telling Margaret that yes, Keli will learn to point and perhaps type to communicate, that he can learn grade-level material, and that Rapid Prompting will, indeed, work with Keli. I think Soma believes and tells all the parents that RPM will work for their child, and that inside every child with autism is a normal, thinking brain. I worry about anyone who has a method that they say will work for all kids, and that inside every child on the spectrum there is a normal, thinking brain. It's not that I want any child to be low-functioning;however, given the diversity that is 'autism', is it really possible that one method will work for all kids and that inside they are really typical? Somehow I find that worrisome. Also, how did these children learn to spell, when they aren't taught reading in school? Are they magically able to spell just by being around words? If that's the case, then why don't typical children all learn to spell just by being around words a lot?

Given all that, however, I appreciate each parent's concern and attempts to find the best method for their child. And if letter boards work, then by all means, use them. I do think that they should be used more often in schools as a means to spell and answer questions.

Clearly, the field nowadays does not have any method for predicting which method of intervention will work with each child, a sad fact....The world would be a better place if we knew that!

Other thoughts/comments?

1 comments:

  1. So true! Oh how I had looked for the "yellow brick road" of autism! As a parent, we often have no idea which way to turn - it is truly a journey that we each need to machete our own path!

    I applaud the film for showing different methodologies for these kids. Not all children benefit from ABA and it is nice to hear of new methods that can be implemented for the all-to-often forgot non-verbal kids.

    I loved hearing about "Carly's Voice" too, a young lady from Canada that started typing all of a sudden. You can see her youtube video where she is interviewed here:
    http://www.youtube.com/watch?v=jq--75v4lI8

    She types independently and started at the age of 11. How did she learn to spell? She was exposed to it. AND she wanted it more than other children. If you could not talk and were in a foreign country, and no one taught you to read or write the language ... I would bet you would figure it out also - and a heck of a lot faster than 10 years!

    I saw that the Autism Research Institute (ARI)visited the HALO clinic and wrote and produced a video stating that they believe this method seems on the up-and-up and should be looked into for parents with children who are non-verbal.

    Here is the link to their site, just click on the video named, "On the Rapid Prompting Method"

    http://www.autism.com/families/videos.htm

    I wasn't disappointed in the film, but instead had a great sense of HOPE. In this jungle of autism, it seems we could all use a little hope!
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